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Living with Wiskott-Aldrich syndrome. How to live with Wiskott-Aldrich syndrome?
Living with Wiskott-Aldrich syndrome: how patients cope day to day and stay positive - real experiences and practical tips.
without treatment you don't.. healthy an normal life after successful treatment.
Posted Mar 3, 2019 by John 2500
I was diagnosed with Wiskott-Aldrich syndrome at 4 years old. Transplannts were in their infancy then and despite my parents being told that I would not get out of my teens I have managed to lead a normal life. I’m 43 and have being trying to find anyone else who has managed to live into adulthood with wiskott- Aldrich. So far I haven’t managed to find anyone depite the help of various organisations. So whilst it may be unique there is always hope.
Steven.
Steven.
Posted Dec 12, 2019 by Steven 100
