121 people with 巴尔得-别德尔综合征 have joined the DiseaseMaps community map. They have shared 249 first-person answers and 7 stories about living with the condition.
3 巴尔得-别德尔综合征患者已参加了SF36调查问卷. Mean of 巴尔得-别德尔综合征 is 1893 points (53 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey