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DiseaseMaps Quality of Life Observatory

Quality of life with 复杂性创伤后压力心理障碍症

An anonymous, aggregate view of self-reported SF-36 results. Higher dimension scores indicate better reported health.

Based on at least 120 eligible observations (counts are rounded down in bands of 10). Editorial release: 2026-Q2.

What the community reports

Compared with the control sample (at least 530 observations), participants associated with 复杂性创伤后压力心理障碍症 reported an approximately 50-point lower mean for Role limitations due to physical health.

Compared with the control sample (at least 530 observations), participants associated with 复杂性创伤后压力心理障碍症 reported an approximately 40-point lower mean for Physical functioning.

Only coarsely rounded means are public. Exact cohort sizes, observation dates, medians and percentiles are withheld to reduce reconstruction risk.

Eligible observations≥120Lower bound after validation and deduplication
Rounded mean legacy total score900Rounded to 100 points; scale 0-3600
Editorial release2026-Q2Only completed calendar quarters are included

Nine reported measures

Aggregate SF-36-compatible scores. Dimensions use a 0-100 scale; higher is better. Health change is a supplementary item.
Measure N lower bound Rounded mean Rounded control mean Rounded all-diseases mean
Physical functioning ≥120 35 75 50
Role limitations due to physical health ≥120 10 60 25
Role limitations due to emotional problems ≥120 15 55 40
Energy and fatigue ≥120 15 45 30
Emotional well-being ≥120 35 60 55
Social functioning ≥120 25 60 45
Pain ≥120 30 65 45
General health ≥120 20 55 35
Health change (supplementary) ≥120 35 50 45

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Methodology

What is included

Active, complete observations from the three historical DiseaseMaps SF-36 tables are read through one canonical layer. Follow-up observations inherit a disease from an active baseline survey; if no baseline exists, they are included only when the participant has exactly one active patient marker. Ambiguous assignments are excluded.

Deduplication and statistics

Exact duplicates for the same authenticated participant, second and score vector count once. Anonymous records cannot unlock or enter a public cohort. The earliest eligible observation per participant is used.

Privacy threshold

Disease-level results are published only when at least 20 eligible observations remain. N is a lower bound in bands of 10; means are rounded to five points (legacy total to 100), and dates, medians and percentiles are withheld.

Only completed calendar quarters are eligible. A durable public snapshot changes only when the cohort crosses into another public N band.

Limitations

This is a voluntary, self-selected community sample. It may not represent everyone with the condition, does not adjust for age, geography, disease severity or coexisting conditions, and cannot establish causation.

Machine-readable methodology and aggregate values