2525 people with 先天性结缔组织发育不全综合征(Ehlers-Danlos综合征) have joined the DiseaseMaps community map. They have shared 875 first-person answers and 75 stories about living with the condition.
1172 先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者已参加了SF36调查问卷. Mean of 先天性结缔组织发育不全综合征(Ehlers-Danlos综合征) is 1044 points (29 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey