先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者的生活。如何与先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)共存?

先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者是否可以过正常的生活?先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者应该如何保持乐观?先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)共存

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Yes, but the let downs associated with pain, awful doctors, isolation, impatient people, etc ARE a challenge. I sense you're already experiencing some depression given the question. Please talk to someone, even if you're unsure. Medication is safe and can work wonders. Depression makes you hurt and pain makes you depressed. Seeking help can improve both and open the doors to a "normal" life.

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