先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者的生活。如何与先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)共存?

先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者是否可以过正常的生活?先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者应该如何保持乐观?先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)可能会影响您的日常生活,但您必须保持乐观。看看其他病患如何抱着乐观的态度与先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)共存

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Discovering I have EDS has been helpful in understanding life long, unexplained, conditions such as Major Depressive Disorder, Obsessive Compulsive Behavior, hyper mobility, fragile skin, periodontal disease, TMJ/Migrains, digestive problems etc. Now that I have an answer or explanation for these conditions I'm addressing them from an educated standpoint-I'm not crazy, lazy or a hypochondriac! Happy? I admit that's a tough one, I'll go as far as saying that I try to enjoy special moments of happiness in between the pain and frustration of having Ehlers Danlos.

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