先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者是否可以寻找伴侣/维持与伴侣的关系?

先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者对于是否可以找到伴侣以及在得知患上先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)后是否可以与伴侣保持关系的个人意见。感情上可能会遇到哪些问题?

原本


Unless you find someone who is really willing to get through all of the pain and all of the problems that might arise, you're going to have some troubles. I am in a relationship for 4 years now. We began dating before I was diagnosed but way after I started having pain and joint problems. One of the major difficulties is getting him to understand how in some days I feel like absolute sh*t, all of my joints hurt and I cannot give another step. How I can't stand for very long or ow I need to sit every so often.

When you're looking for a partner, try to be honest. I think no one likes to be dating someone and then only discovering what their life really is.

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