先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者是否可以寻找伴侣/维持与伴侣的关系?

先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者对于是否可以找到伴侣以及在得知患上先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)后是否可以与伴侣保持关系的个人意见。感情上可能会遇到哪些问题?

原本


Yes. And no. EDS does not define you, it is just a part of your overall makeup. If you can learn ways to cope with your symptoms that allow you to maintain a social life (because really, how are you going to meet people if you never get out), it's entirely possible. I've personally never felt like I've had to "settle" when it comes to men and I have brutally high standards. Take care of yourself first and your increasing wellness will bring the good people into your life if you truly "live" it. Oh. And stay off of EDS support Facebook groups. Those are the people who are going to die alone! Misery loves company and they all hang out there!

翻译