如何知道我有没有先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)

什么症状应该引起您可能身患先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)的疑虑?其他先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者针对此事所给予的建议以及应该寻求什么专科医疗。

原本


There's a catch phrase in EDS: "If you can't connect the issues, think connective tissues!"

I will repeat what some websites say:"
Ehlers-danlos syndrome (eds) is a group of inherited disorders that weaken connective tissues. Connective tissues are proteins that support skin, bones, blood vessels and other organs. Eds usually affects your skin, joints and blood vessel walls. Symptoms include
loose joints
fragile, small blood vessels
abnormal scar formation and wound healing
soft, velvety, stretchy skin that bruises easily"

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