先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者是否可以工作?他们可以从事哪种工作?

查阅其他先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者对于先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者是否可以工作以及适合先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者的工作的意见

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They can't work in every field. This might sound harsh but a lot of standing is really really bad for our joints. I'm 21 and I had to quit working in a supermarket because I couldn't stand standing for so long.
It depends of the type you have and if your symptoms are mild, severe or extreme but I do know, from talking to EDSers that a lot of us had to quit or change our dream jobs because of our syndrome.

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