先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者是否可以工作?他们可以从事哪种工作?

查阅其他先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者对于先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者是否可以工作以及适合先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者的工作的意见

原本


Again this question is necessarily predicated by "depending on the individual's personal EDS experience."

As levels of disability and symptoms vary, so too does the ability of each individual to work. Generally speaking EDSers a fully capable of all types of employment until their symptoms intensify as the illness progresses. This is because EDS is a deteriative condition.

As chronic joint, muscle and bone pain intensifies and subluxations/dislocations become more frequent, the degree of physical labour that can be tolerated will lessen. This extends to types of employment requiring long periods of time spent on your feet (such as shop assistant, restaurant wait staff). Even clerical and sedentary office jobs may become difficult over time due to pain and inflammation in the fingers. Lastly, chronic fatigue can make any type of employment unrealistic.

However, many EDSers overcome such issues by working part time; accessing ergonomic and disability specific equipment. Unfortunately, some EDSers will become so debilitated by their symptoms that employment eventually becomes outside their reach.

There is generally no specific occupation that EDSers are precluded from working in. Employment opportunities need to be assessed on a case by case basis.

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