先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者是否可以工作?他们可以从事哪种工作?

查阅其他先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者对于先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者是否可以工作以及适合先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者的工作的意见

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Many people do not work, but that is because their symptoms are not well managed. With good symptom management, which could take years to achieve for those already far down the path of misdiagnosis and pain, work is possible and also helpful. Apart from paying the crazy bills people with EDS incur, work can help one feel accomplished, which improves mood, which directly impacts pain. I highly suggest finding a way to be your own boss.

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