您有什么建议可以提供给先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)的新患者?

查阅其他先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者给予先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)新患者的建议

原本


Study! !You WILL need to advocate for yourself because most of the time you will know more about eds than your doctors! Keep seeing different doctors until you find one willing to search for answers with you. You'll go through many but don't give up

翻译