您有什么建议可以提供给先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)的新患者?

查阅其他先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者给予先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)新患者的建议

原本


If the doctor you're seeing isn't willing to go to the ends of the earth to help you (and by help, I mean do more than pile you up with addictive pills because that is tragically VERY common), get a new doctor.

翻译