您有什么建议可以提供给先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)的新患者?

查阅其他先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者给予先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)新患者的建议

原本


To LIVE, do the things you enjoy while you can, you may not be able to later! Don't think of EDS as a death sentence, think of it as a reason to explore the world and not procrastinate. DON"T be reckless, DO be kind, to both yourself and others. What would I have done differently?, I wouldn't have been such a perfectionist and I would have been less judgmental towards others. Also, I wouldn't have been as demanding on my body physically, wouldn't have pushed so hard and maybe could have avoided several injuries.

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