先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)的盛行率是多少?

有多少先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者?男性与女性是否有同样的盛行率?不同的国家是否有不同的盛行率?

原本


Older EDS information prevalence is said to be 1/10,000 to 1/25,000 with approximately 20,000 to 50,000 in the US alone. Recent epidemiology says it's closer to 1/5,000 with 1.5 million cases reported Worldwide. Diagnosis is difficult due to the fact that children are naturally more flexible, and men are less likely to seek medical assistance than females. Age and the natural aging process contributes to increased diagnosis later in life.

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