先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者的预期寿命有多长?

先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)患者的预期寿命以及先天性结缔组织发育不全综合征(Ehlers-Danlos综合征)的相关研究和最新进展

原本


It depends of the type of EDS. EDS vascular type is the most dangerous type because it involves arteries and blood vessels. EDS type Hypermobility has the same life expectancy as "regular" people. Of course you'll have a life with more pain but doesn't necessarily means you'll live less time.
Since there are so many EDS types, one cannot answer this question as if only a type existed.

The thing that might complicate more the life of a person with EDS is not being diagnosed.

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