280 people with 骨纤维发育不良 have joined the DiseaseMaps community map. They have shared 355 first-person answers and 30 stories about living with the condition.
16 骨纤维发育不良患者已参加了SF36调查问卷. Mean of 骨纤维发育不良 is 1363 points (38 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey