5 people with 遗传性骨发育不良并肢端溶骨症 have joined the DiseaseMaps community map. They have shared 66 first-person answers and 1 stories about living with the condition.
2 遗传性骨发育不良并肢端溶骨症患者已参加了SF36调查问卷. Mean of 遗传性骨发育不良并肢端溶骨症 is 1065 points (30 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
