20 people with 脊椎干骺端发育不良/Kniest发育不良 have joined the DiseaseMaps community map. They have shared 119 first-person answers and 1 stories about living with the condition.
2 脊椎干骺端发育不良/Kniest发育不良患者已参加了SF36调查问卷. Mean of 脊椎干骺端发育不良/Kniest发育不良 is 2390 points (66 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey