51 people with 肢节型肌营养不良症 have joined the DiseaseMaps community map. They have shared 226 first-person answers and 5 stories about living with the condition.
9 肢节型肌营养不良症患者已参加了SF36调查问卷. Mean of 肢节型肌营养不良症 is 1661 points (46 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey