9 people with Marinesco-Sjogren综合征(遗传性共济失调-侏儒-智力缺陷综合征) have joined the DiseaseMaps community map. They have shared 96 first-person answers and 0 stories about living with the condition.
6 Marinesco-Sjogren综合征(遗传性共济失调-侏儒-智力缺陷综合征)患者已参加了SF36调查问卷. Mean of Marinesco-Sjogren综合征(遗传性共济失调-侏儒-智力缺陷综合征) is 852 points (24 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey