165 people with 眼咽型肌营养不良症 have joined the DiseaseMaps community map. They have shared 309 first-person answers and 8 stories about living with the condition.
10 眼咽型肌营养不良症患者已参加了SF36调查问卷. Mean of 眼咽型肌营养不良症 is 1321 points (37 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey