眼咽型肌营养不良症患者的预期寿命有多长?

眼咽型肌营养不良症患者的预期寿命以及眼咽型肌营养不良症的相关研究和最新进展

原本


Since my granddad passed away 25 years ago due to OPMD. I cannot see big improvements on the cure/treatment of this disease. To be honest, we are very little group of people in the world with this disease and I do not know how much effort/money would invest any pharmaceutical in us :-(

翻译