12 people with 骶椎发育不全/尾端退化综合征 have joined the DiseaseMaps community map. They have shared 215 first-person answers and 1 stories about living with the condition.
2 骶椎发育不全/尾端退化综合征患者已参加了SF36调查问卷. Mean of 骶椎发育不全/尾端退化综合征 is 1283 points (36 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey