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Living with 48,XXYY syndrome. How to live with 48,XXYY syndrome?
Living with 48,XXYY syndrome: how patients cope day to day and stay positive - real experiences and practical tips.
If you read the forums re: people with KS - it reads like an obituary - its like the worlds worse news has been given to them and they only have minutes to live.
If you see it for what it is then you can live with KS - it just requires more work than the average joe.
Am I happy living with KS; Yes - everyday I find more information out about KS; some days I don't bother - it's fine. There are things I can't change, but I also know there are explainable reasons as to why things in the past happened and I understand it now.
To be happy with KS you have to take everyday as it comes; and if you are unhappy with something - change it. To get the best treatment both medically and psychologically you have to push like hell - but you will get it.
If you see it for what it is then you can live with KS - it just requires more work than the average joe.
Am I happy living with KS; Yes - everyday I find more information out about KS; some days I don't bother - it's fine. There are things I can't change, but I also know there are explainable reasons as to why things in the past happened and I understand it now.
To be happy with KS you have to take everyday as it comes; and if you are unhappy with something - change it. To get the best treatment both medically and psychologically you have to push like hell - but you will get it.
Posted Mar 4, 2017 by Ash 1120
