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Living with Achalasia. How to live with Achalasia?
Living with Achalasia: how patients cope day to day and stay positive - real experiences and practical tips.
This is a pretty difficult question to answer as everyone is different (feel like i'm repeating myself here!). Different people, different levels of this disease.
Generally, I'm a happy, healthy, outgoing person. I've lived with this disease for 12 years. I've had my good days and some very dark days where I just thought 'I can't do this anymore' as a result of being mentally and physically exhausted. I've learnt to listen to my body, which foods are OK for me and others to avoid.
One thing we have to remember is that disease, despite all the medical research that's out there, it didn't come with instructions and there's NO CURE (yet!). So I just take one day at a time....I am an Achalasia Warrior, just as you are :-)
Generally, I'm a happy, healthy, outgoing person. I've lived with this disease for 12 years. I've had my good days and some very dark days where I just thought 'I can't do this anymore' as a result of being mentally and physically exhausted. I've learnt to listen to my body, which foods are OK for me and others to avoid.
One thing we have to remember is that disease, despite all the medical research that's out there, it didn't come with instructions and there's NO CURE (yet!). So I just take one day at a time....I am an Achalasia Warrior, just as you are :-)
Posted Sep 20, 2017 by Teresa 3050
Yes. Its possible to be happy living with achalasia. You will however, need to adjust. You won't be "normal." You will need to grieve the 'you' and the life that you've lost. You'll lose aquaintances and some family. Cherish those that remain. Then find ways to go forward.
One thing that I (and I think most of us) doing s to carry a "spit cup." Make it beautiful; make it large. If you're going to an event, eat well before going, or after. That lessens the possibility of "having an eruption." But always take your cup.
One thing that I (and I think most of us) doing s to carry a "spit cup." Make it beautiful; make it large. If you're going to an event, eat well before going, or after. That lessens the possibility of "having an eruption." But always take your cup.
Posted Oct 27, 2017 by JLMcK 5550
Reduce stress, learning what works for me.
Posted Jul 14, 2020 by Gina Manion 2500
Take each day as it comes other days will be better others will be difficult what is important is to find things that make you happy
Posted Aug 16, 2022 by [email protected] 2500
Translated from portuguese
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The best is to operate, after which I operated, normal life.
Posted May 27, 2017 by David 1250
Translated from spanish
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IF YOU CAN LIVE WITH ACHALASIA, AND BE VERY HAPPY FOR THE CHANGE AFTER THE SURGERY WAS EXCELLENT, EAT PORCIONE SMALL, CHEW THEM WELL AND SLOWLY
Posted Aug 22, 2017 by Lorena 2250
Translated from portuguese
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The phrase that has helped me most with Achalasia; "Is what you have for today, be grateful, the anger does not help anything !!!!". Vc is rare, simple as that.
Posted Sep 18, 2017 by Deivis 1150
