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Which advice would you give to someone who has just been diagnosed with Adenoid Cystic Carcinoma?
Advice for the newly diagnosed with Adenoid Cystic Carcinoma, written by people who have lived it. What they wish they had known on day one.
Reach out to those who have Adenoid Cystic Carcinoma, and limit your Google research as much of it is outdated. Find a doctor who is acc knowledgeable and seek out accoi, Adenoid Cystic Carcinoma organization international.
Posted May 19, 2017 by Carmenita 2650
Ask a lot of questions, do plenty of research, don't feel pressured to go with a treatment plan without getting a second opinion, and make sure to demand regular follow up scans for life to check for local recurrence and distant metastases.
Posted May 21, 2017 by Jen 2310
Don't be afraid life is not short for our cncer. ACC will learn how to live with you and not the opposite.
Posted Sep 10, 2017 by Archontoula 200
Read as much as you can. Check google news feed, there is some encouraging research happening.
Posted Oct 17, 2017 by Peter 2500
