Story about Adenomyosis .

Patient activist, wanting to share in research

Jun 23, 2026


In my role as an endometriosis advocate, I am helping a company who are researching adenomyosis and who are looking for women living in the US, who have adeno (and also endo) diagnosed by MRI, to interview by phone at your convenience. (There are a couple of exclusion criteria, such as being on a hormone treatment.) Your participation would be paid. If you are interested in participating, please email me on endo.activist[at]gmail. com and I'll put you in touch. This is a chance for patients to be involved BEFORE companies decide what they think is best for us. Thank you. 

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