Mechelle's interview
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How did all start?
Lots of Joint pain very ill for 3 years 8 specialists no one could figure out why my Sed rate was so High and My WBC count super high..
Do you already have a diagnosis? How long did it take you to get it?
Last November finally I found a Dr who knoew what it was immediatly.. He researched what all of the ther Drs tested for and did not need to take one more test!
For what medical specialties have you been treated? What has been the most useful specialty for your?
I take Anakinra (Kineret) shots daily.. Those seen to help the most.
What has been the most useful thing for you so far?
Having a Dr who gets it...
What have been your biggest difficulties?
The pain and exhaustion.. Never have enough energy to get through a normal day.
How has your social and family environment reacted? Have your social or family relationships changed?
Somewhat.. I cannot get out and do the fun things I use to do..
What things have you stopped doing?
Most things.. The exhaustion and pain take over.. Even If Im feeling good I usually try to do more than I am capable of.. I tire very easily.. I do not mean a little tired I mean needs a 3 or more hour nap tired.. I NEVER napped in my life until now..
What do you think about the future?
Im not sure.. :(
So far, which years have been the best years in your life? What have you done during them?
20's
What would you like to do if you didn’t have your condition?
EVERYTHING!!! Ski, boat, hike, camp you name it..
If you had to describe your life in a sentence, what would it be?
Painful
Finally, what advice would you give to a person in a similar situation?
Keep your head up.. Never give up...
