8
Which advice would you give to someone who has just been diagnosed with Adult-onset Stills Disease?
Advice for the newly diagnosed with Adult-onset Stills Disease, written by people who have lived it. What they wish they had known on day one.
Talk to family and friends, don't bottle up your emotions. Ask for help, you're going to need it, take it easy on yourself. Cry when you need to. I'd of asked for help sooner, I was used to being the strong, reliable member of my family and I tried to continue to be that, I still am strong mentally and emotionally but it's good to accept your physical limitations. Laugh and enjoy the small things in life, they become very important.
Posted Feb 25, 2019 by Terry 2550
Advocate for yourself. You know yourself better than any doctor ever can. If you feel something isn't right, or you aren't getting the treatment you need, speak up, or find another doctor who will listen and help. Try not to get so depressed about the change in your life that you become resigned to bring "sick " forever. You can help yourself get better if you just dont give up until you find something that works. Also, dont ever expect instant results - give the medicine time to start working before you give up on it.
Posted Sep 29, 2019 by Jenifer E 4550
