Help us to help more people
  2. Alport Syndrome
  3. Advice
Very low protien diet
by Janine
Eating and drinking healthy and maintaining a healthy weight
by April
Alport Syndrome Foundation Support Grouo
by Kimberlie Ann
My condition has left me with hearing loss and vision issues. I also have asthma, anemia and anxiety issues. Was on Pd dialysis for 2yrs.
by Sarah
Dr. Kroll my (nefrologe) doctor
by Christel1974
Family support
by Sarah
Having parents that were always there
by debkaybuts
Eating less red meat
by Donna
Neomyacin (and after growing sensitized, stopping the neomyacin) for AK
by Swimming with AK
Meeting others
by Jeanette
My husband is my absolute rock.
by Katie
2 months of Lisinopril, changed to Telmisartan.
by Steadyaftermath
Running and bicycling
by Janine
My therapy dog Chloe.
by April
Family
by Kimberlie Ann
I have a rare genetic form of alports, which has recently been investigated by a geneticist. My brother is also believed to have the same condition.
by Sarah
My medication: a combination of Rasilez, spironolacton and aliskiren
by Christel1974
Alport support groups
by Sarah
Having capd dialysis
by debkaybuts
Resting when needed
by Donna
Chlorhexidine Gluconate & PHMB for AK
by Swimming with AK
I'm a mother of 2 affected children
by Jeanette
Having a low potassium diet helps.
by Katie
I've been trying to work on changing my diet.
by Steadyaftermath
Meditation
by Janine
Finding ways to still help people and contribute.
by April
Great doctors
by Kimberlie Ann
Both me and my brother have had a transplant and are living with the changes this brings both good and bad.
by Sarah
Drink enough water and do exercises
by Christel1974
Knowing your not alone
by Sarah
Receiving a renal transplant
by debkaybuts
Exercise
by Donna
Losartan for my Alport syndrome
by Swimming with AK
Meeting at the alport workshop with my son helps him
by Jeanette
Joining alport warriors helped.
by Katie