- Alport Syndrome
- Interviews
Katie's interview
How did all start?
Water infections all the time
Do you already have a diagnosis? How long did it take you to get it?
Took about 5 year
What has been the most useful thing for you so far?
Dietician advice
What have been your biggest difficulties?
Feeling tired and water retention
How has your social and family environment reacted? Have your social or family relationships changed?
My husband is my biggest support.
What things have you stopped doing?
Nothing! I just find a balance
What do you think about the future?
I try not to think of the future. Just live 12 weeks at a time
So far, which years have been the best years in your life? What have you done during them?
The year my daughter was born
The year I got married
What would you like to do if you didn’t have your condition?
Eat chips again
If you had to describe your life in a sentence, what would it be?
Living life to the fullest with no regrets.
Finally, what advice would you give to a person in a similar situation?
Manage your diet. Low potassium and phosphate helps. Do the things you enjoy but listen to your body. X
