Story about Alport Syndrome .

My son!

Sep 19, 2017

By: Erin

Year Condition Began: 1999


Born with Alports. Has been medicated since he was 2 months. Could not tell anything was wrong at all. In the last few years he has lost a bit of hearing and had to get glasses. Now he is 18 and we are in the first steps of starting the transplant. It's finally here and scary for me(mom) but my son just says he is greatfull he has had the life he has. And it's just a transplant. Oh if it was just that simple.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Alport Syndrome advice

Which advice would you give to someone who has just been diagnosed wit...

Latest progress of Alport Syndrome

What are the latest advances in Alport Syndrome?

Is Alport Syndrome hereditary?

Is Alport Syndrome hereditary?

Alport Syndrome diet

Alport Syndrome diet. Is there a diet which improves the quality of li...

Celebrities with Alport Syndrome

Celebrities with Alport Syndrome

Alport Syndrome sports

Is it advisable to do exercise when affected by Alport Syndrome? Which...

Natural treatment of Alport Syndrome

Is there any natural treatment for Alport Syndrome?

History of Alport Syndrome

What is the history of Alport Syndrome?