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Which advice would you give to someone who has just been diagnosed with Amyloidosis?
See some advice from people with experience in Amyloidosis to people who have just been diagnosed with Amyloidosis
have a close follow up of your heart function and start medications which are available even if off label use
Posted Jul 11, 2019 by ESPERARE
Do not believe everything you read on the internet. It's way behind!! Find the nearest Amyloidosis Support Group or connect on Facebook with the community.
AmyloidosisSupportGroups.org
AmyloidosisSupportGroups.org
Posted Mar 2, 2017 by Beth 1100
I think if you can keep your loved ones close and in contact with you that is so necessary. Because you need people around you to help with doctor appointments, help with day to day things, help cook (that's a big one), help you to do things that you enjoy.
I think just keeping everyone in the loop and keep them up to date so that they are there for you. Learn to depend on others. They actually enjoy helping when they can.
I think just keeping everyone in the loop and keep them up to date so that they are there for you. Learn to depend on others. They actually enjoy helping when they can.
Posted Jun 3, 2017 by Nancy 2000
Learn all you can, have no fear, take the next step.
Posted Jul 19, 2017 by Phyllis 2000
