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How do I know if I have Amyloidosis?

What signs or symptoms may make you suspect you may have Amyloidosis. People who have experience in Amyloidosis offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Amyloidosis?
3 answers
More specific symptoms, related to particular organs, include:

swollen ankles (oedema) due to kidney or heart involvement

tingling in the fingers or toes (paraesthesiae)

due to nerve involvement, or breathlessness due to amyloid in the heart

Posted Jul 11, 2019 by ESPERARE
I guess if you are having heart problems and lung issues and your ankles swell up and you just don't feel great you should have it checked. Although I guess it could be a lot of other things too.

Posted Jun 3, 2017 by Nancy 2000
I went to my primary care over a period of 5 months with diarrhea, dehydration, losing wait, then referred to oncologist/hematologist.

Posted Jul 19, 2017 by Phyllis 2000

Do I have Amyloidosis?

Amyloidosis life expectancy

What is the life expectancy of someone with Amyloidosis?

8 answers
Celebrities with Amyloidosis

Celebrities with Amyloidosis

3 answers
Is Amyloidosis hereditary?

Is Amyloidosis hereditary?

5 answers
Is Amyloidosis contagious?

Is Amyloidosis contagious?

5 answers
ICD9 and ICD10 codes of Amyloidosis

ICD10 code of Amyloidosis and ICD9 code

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Natural treatment of Amyloidosis

Is there any natural treatment for Amyloidosis?

4 answers
Living with Amyloidosis

Living with Amyloidosis. How to live with Amyloidosis?

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Amyloidosis diet

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World map of Amyloidosis

Find people with Amyloidosis through the map. Connect with them and share experiences. Join the Amyloidosis community.

Stories of Amyloidosis

AMYLOIDOSIS STORIES
Amyloidosis stories
Hi , Four years ago , I was diagnosed with Familial Amyloid Polyneuropathy with the mutation Val30Met. In order to halt the progress of the disease I went through a liver transplantation .  I am currently living my life to the maximum by doing ev...
Amyloidosis stories
No real help for AA of unknown cause. In my digestive tract now too. 
Amyloidosis stories
His name was Sidney Caldwell.  I lost him to AL Amyloidosis in November of 2014
Amyloidosis stories
Spring  of 2014 started out with the usual cold. By August/September my proper voice never returned properly and many people thought I had a cold all the time. Went to my GP who sent me to Specialist in my town and from there yo another Specialist/S...
Amyloidosis stories
Like many people with Amyloidosis, I was dismissed by the medical profession.. The symptoms are variable and vague and they mak other illnesses. However in saying that when one googles them all together viola AMYLOIDOSIS comes up as a likely diagnosi...

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