- Andersen-Tawil syndrome
- Interviews
Katie's interview
How did all start?
I woke up one morning and couldn't move
Do you already have a diagnosis? How long did it take you to get it?
Yes, it took well over a year to be diagnosed with it
For what medical specialties have you been treated? What has been the most useful specialty for your?
I have not found anything that helps honestly
What has been the most useful thing for you so far?
When I have an episode do as little as possible
What have been your biggest difficulties?
walking, running, standing up, wanting up steps
How has your social and family environment reacted? Have your social or family relationships changed?
no, they are all supportive
What things have you stopped doing?
cheering, softball
What do you think about the future?
I don't know what to think about it
What would you like to do if you didn’t have your condition?
play college softball and cheer for the great white sharks
If you had to describe your life in a sentence, what would it be?
Most confusing and hardest thing you can think of
Finally, what advice would you give to a person in a similar situation?
do you. don't let others judge on what they don't know
