World map of Hereditary Angioedema View more
  2. Hereditary Angioedema
  3. Forum
  4. Top questions
  5. Question 14
14

How do I know if I have Hereditary Angioedema?

What signs or symptoms may make you suspect you may have Hereditary Angioedema. People who have experience in Hereditary Angioedema offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Hereditary Angioedema?
3 answers
Through results of specific blood tests
Posted May 23, 2017 by Donna 2250
Unexplained swelling, nausea and vomiting.
Posted Sep 3, 2017 by Mary Helen 1400
Swelling of the hands and or feet is the most common symptoms. Abdominal attacks that leave you dry heaving with intense stomach pains.
Posted May 14, 2019 by [email protected] 2300

Do I have Hereditary Angioedema?

Hereditary Angioedema life expectancy

What is the life expectancy of someone with Hereditary Angioedema?

9 answers
Celebrities with Hereditary Angioedema

Celebrities with Hereditary Angioedema

1 answer
Is Hereditary Angioedema hereditary?

Is Hereditary Angioedema hereditary?

6 answers
Is Hereditary Angioedema contagious?

Is Hereditary Angioedema contagious?

6 answers
ICD9 and ICD10 codes of Hereditary Angioedema

ICD10 code of Hereditary Angioedema and ICD9 code

4 answers
Natural treatment of Hereditary Angioedema

Is there any natural treatment for Hereditary Angioedema?

5 answers
Living with Hereditary Angioedema

Living with Hereditary Angioedema. How to live with Hereditary Angioedema?

8 answers
Hereditary Angioedema diet

Hereditary Angioedema diet. Is there a diet which improves the quality of l...

8 answers

World map of Hereditary Angioedema

Find people with Hereditary Angioedema through the map. Connect with them and share experiences. Join the Hereditary Angioedema community.
View map

Stories of Hereditary Angioedema

HEREDITARY ANGIOEDEMA STORIES
Hereditary Angioedema stories
LINDA ACTON'S STORY
Mine started in 2009 with my first swell, it was my lips and cheek. That is the same time the ucartia started also. It took my Dr. 5 years to find something to help me control and survive my Angioedema. I never knew how bad this could be till I was d...
Hereditary Angioedema stories
AEH
Desde niño tuve que soportar los diversos episodios de AEH sin saberlo, pasando de medico en medico con diversidad de diagnosticos y ordenes de cirugias innecesarias, gracias a Dios no acudi a ninguna. Fue hace tres años que optuve el diagnostico r...
Hereditary Angioedema stories
MY HAE STORY
My earliest memory of HAE symptoms was when I was about 6 or 7.  I would occasionally get the abdomen swelling, be sick and sweating all day, then I would finally vomit and then feel better, go to sleep and be better the next morning.  I consider m...
Hereditary Angioedema stories
HAE IN ME
I was diagnosed accidentally, after seeing a TV show where the host talked about her HAE in 2014. My first attack was at 8, when I was mistakenly hospitalized with appendicitis.  The surgery wasn't done, because I felt better in 3 days.  Next reme...
Hereditary Angioedema stories
HAE HELP
i was dx in 2008 with my first fasel swell . im hae type 2 . im co founder of the facebook group ( https://www.facebook.com/groups/156649074393978/ )

Tell your story and help others

Tell my story

Hereditary Angioedema forum

HEREDITARY ANGIOEDEMA FORUM
Hereditary Angioedema forum
CINRYZE SHORTAGE
Hi All, Is anyone aware of Cinryze experiencing a shortage supply? If so, why and where is this shortage (US or Europe)?   Thanks!
Hereditary Angioedema forum
CINRYZE SHORTAGE
Hi All, Is anyone aware of Cinryze experiencing a shortage supply? If so, why and where is this shortage (US or Europe)?   Thanks!
Hereditary Angioedema forum
PATIENT PERSPECTIVE
Hi Everyone, I am interested in understanding and learning about your perspective on treatments and services available for HAE. What happens when you lose insurance and you need to obtain treatment? During this time, are you given treatment fre...
Hereditary Angioedema forum
WHAT DO YOU THINK ABOUT...
Hi Everyone, I'm trying to understand what it is like for people with HAE. Therefore, would you ever switch treatment? Why or why not? What happens if you lose insurance coverage? Are you still recieving treatment? Was there a time where you had to ...
Hereditary Angioedema forum
FOR THOSE OF YOU ON CINRYZE, FIRAZYR, OR KALBITOR
Hi All, For those of you currently (or in the past) taking Cinryze, Firazyr, or Kalbitor, has Shire always paid for your co-pays through the co-pay assistance program or was there a limit to how much they paid? I've also heard that the case managers...

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map