9

What is the life expectancy of someone with Antiphospholipid / Hughes Syndrome?

Life expectancy with Antiphospholipid / Hughes Syndrome: what research and real patients say, recent advances, and a medically reviewed summary with sources.

Antiphospholipid / Hughes Syndrome life expectancy
8 answers
The same as anyone else provided you're well medicated and take care of yourself.

Posted May 16, 2017 by Kate 1000
This is dependant on recurring thrombosis issues but I wouldn't say APS lowers life expectancy, it's the complications that can come about from having APS

Posted May 17, 2017 by Ruth 1321
I know, and am very good friends with a woman in her 80s with Antiphospholipid Antibody Syndrome.

Posted May 18, 2017 by Tauren 2100
Full life expectancy if managed correctly

Posted Oct 30, 2017 by Denise Hampson 2000
No matter how well some people manage APS it does not always stop the clotting. So to say full life expectancy if managed correctly does not seem right to me. I would say it depends on how much damage was done before your diagnosis and on how well your medication controls your APS. I would also say that there are probably no reliable statistics yet as the illness was only discovered in 1983 and treatment has improved since then. Certainly back 16 years ago even a straightforward case was thought to reduce your life expectancy and if you have complications such as other illnesses or stuff like high cholesterol then it was reduced further.

Posted Jan 16, 2018 by Judi 100
If you take care of yourself, i.e. Keep doctors apps., eat a consistent diet, don't avoid vitamin k foods-but eat them regularly and moderately, take your Anticoagulent in the evening, this helps the lab be consistent in determining your INR,
avoid alcohol, don't skip meals, treat your illnesses the lab can adjust your Anticoagulent dosage, you can live a normal lifestyle! LHR

Posted Feb 2, 2018 by Lhrlovesmar 3550
A normal life expectancy unless a clotting incident happens

Posted May 1, 2019 by JL 1700
Life expectancy is generally not shortened by it, it it is managed.

Posted Aug 17, 2022 by gloria_kazan 7450

Antiphospholipid / Hughes Syndrome life expectancy

Celebrities with Antiphospholipid / Hughes Syndrome

Celebrities with Antiphospholipid / Hughes Syndrome

2 answers
Is Antiphospholipid / Hughes Syndrome hereditary?

Is Antiphospholipid / Hughes Syndrome hereditary?

6 answers
Is Antiphospholipid / Hughes Syndrome contagious?

Is Antiphospholipid / Hughes Syndrome contagious?

7 answers
ICD9 and ICD10 codes of Antiphospholipid / Hughes Syndrome

ICD10 code of Antiphospholipid / Hughes Syndrome and ICD9 code

7 answers
Natural treatment of Antiphospholipid / Hughes Syndrome

Is there any natural treatment for Antiphospholipid / Hughes Syndrome?

7 answers
Living with Antiphospholipid / Hughes Syndrome

Living with Antiphospholipid / Hughes Syndrome. How to live with Antiphosph...

8 answers
Antiphospholipid / Hughes Syndrome diet

Antiphospholipid / Hughes Syndrome diet. Is there a diet which improves the...

9 answers
History of Antiphospholipid / Hughes Syndrome

What is the history of Antiphospholipid / Hughes Syndrome?

6 answers

World map of Antiphospholipid / Hughes Syndrome

Find people with Antiphospholipid / Hughes Syndrome through the map. Connect with them and share experiences. Join the Antiphospholipid / Hughes Syndrome community.

Stories of Antiphospholipid / Hughes Syndrome

ANTIPHOSPHOLIPID / HUGHES SYNDROME STORIES
Antiphospholipid / Hughes Syndrome stories
Hi my name is Tracy I'm 49 yrs old .. Just over 2 yrs ago I woke at 5am with cramp in my calf wasn't able to weight bare on it so gp told me to rest.. 2 days later it swelled up and was red n painful so husband took me to A&E had blood done came bk p...
Antiphospholipid / Hughes Syndrome stories
I miscarried 3 times before my doctor decided to see why my babies were dying inside of me. The third pregnancy lasted 20 weeks. It was the baby girl I longed for and I was devastated. I was diagnosed in 1992 but we waited 6 years to try again. I was...
Antiphospholipid / Hughes Syndrome stories
I've been struggling with a lot of symptoms since the early teens. No doctor believed me until I got my first blood clot at 18. I got diagnosed in march 2016.
Antiphospholipid / Hughes Syndrome stories
I had my first experience with a blood clot and 1999. It was behind my left me. I've been ended up with multiple pes throughout my lungs. I felt like I was going to die. Fast forward to 2006 and 6 miscarriages later. I found out that I was pregnant. ...
Antiphospholipid / Hughes Syndrome stories
Had a stroke back in 1997. Had the diagnose in 2003. Thinking back my symptoms started back in the 1980's. Numb left foot causing problems walking or standing for longer periods. It turned out that I had a large cloth in the artery to the leg. Had ...

Tell your story and help others

Tell my story

Antiphospholipid / Hughes Syndrome forum

ANTIPHOSPHOLIPID / HUGHES SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map