Não prolongar rotina. Descansar o suficiente.
When you feel like your body needs rest, just rest, don't keep pushing yourself
Amazing neurosurgeon, Dr. Eric Trumble
Being on the Chiari Malformation Site
My family and my partner
Healthy lifestyle
Stay positive. I went 17 years misdiagnosed and hope was all I had...But hope got me through.
not going where sounds are huge and many people talking together
Parents who pushed the doctor to find the cause for my problems.
The support of my friends & family
My family & friends
support of my spouse
Healthy diet and exercise!!
Family support
listen to my body when need to rest I do
Avoid severe temperature changes or too much heat exposure
Keep a symptoms journal
I use essential oils to control the residual pain. I have been OTC med free for a year now.
Epson salt baths
Family Support
Ice cap and cold drinks (brainfreeze )
I avoid stress and stressful situations. Avoid negative people who do not support and encourage me. I belong to a positive, upbeat, supportive Chiari group.
Chiari, EDS, POTS, IIH
Multivitamins help ALOT with the nerve damage pain
i have an extremely supportive family
Being more active
Having a great Doctor
My team of World Renowned Neurosurgeons in New York City who saved my life
Meaningful Work
Never over doing it
shunt placement
Weekly massages help keep the muscles in my neck and shoulders from knotting up to badly.
Stay calm at all times
My Family and Friends
My Psychiatrist FINALLY listening.
3 surgerys
Oxygen
Treatment for POTS and OI
My little granddaughter and I both continue the journey and fight for awareness of these diseases as well as someday a cure !
surgery helped some
Support from family and friends
shunt
Tens unit
Chiropractic treatment/massage therapy
Pain psychology, self hypnosis, distraction, meditation
My meds
changing what i eat
Massage