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Living with Arnold Chiari. How to live with Arnold Chiari?
Living with Arnold Chiari: how patients cope day to day and stay positive - real experiences and practical tips.
Follow medical advice, stay active, follow up with doctors. Take medication as prescribed.
Posted Apr 12, 2017 by Ljdb 2620
While I tend to be a very positive person, I still get in a slump every so often. The key is to remember that there is a purpose for everyone, and that whether you know it or not, you provide strength to someone.
Posted May 10, 2017 by El_Choppo 1250
Learn your new normal. You may have to adjust how you do things, but you'll figure it out. Don't give up on yourself, and try to keep a positive attitude.
Posted May 10, 2017 by Reagan 1100
You have to make adaptations to your life. From no more roller coasters to being mostly bedbound and relying on others when you were once so independent and having a custom power wheelchair and handicap house to multiple surgeries one after another. Again, it depends on the individual. You of course would be much happier without Chiari especially for the pain aspect. But you can be happier once you accept it. That part is hard.
Posted May 10, 2017 by Aimes 1051
Accepting any limitations and adopting a positive attitude can only help the person living with Chiari.
Posted May 10, 2017 by Kathleen Giffin Bartkus 1000
Yes, life is what you make it.
As lon as you have a positive mind you can live with anything
As lon as you have a positive mind you can live with anything
Posted Jul 23, 2017 by Erena 2000
Accepting the disease is huge. I think there is a lot of shock and recommend therapy to help ease the new reality
Posted Aug 30, 2017 by Michelle 2000
above all try and remain positive and as active as possible...listen to your body...accept any limitation you have and talk to other chiari people and socialize ...don't isolate yourself
Posted May 27, 2018 by xyzmike1 3050
Diet, exercise, do not become stressful, stay positive about your health , learn your body
Posted Nov 29, 2019 by TRIPLE-1 CHIARI 2500
llevarlo con calma y pensar en que luego de la operación todo el sufrimiento valió la pena
Posted Jun 16, 2020 by valen bazan 1200
Translated from spanish
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You can have a very normal life and full.
I have been an athlete of gymnastics including use of apparatus such as parallel bars, colt,fixed bar or the ground. I never had any kind of problem to execute the exercises (some very hard and very large impact), I was a professional dancer for 10 years, never got out of the gym and live on roller skates and dance tracks.
All thanks to having a muscles optimal in stopping the symptoms to appear.
And we are always left with the attitude...if there is attitude, we can change everything.
I have been an athlete of gymnastics including use of apparatus such as parallel bars, colt,fixed bar or the ground. I never had any kind of problem to execute the exercises (some very hard and very large impact), I was a professional dancer for 10 years, never got out of the gym and live on roller skates and dance tracks.
All thanks to having a muscles optimal in stopping the symptoms to appear.
And we are always left with the attitude...if there is attitude, we can change everything.
Posted May 17, 2017 by Lynda Estrada 6835
Translated from spanish
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You will experience the day-to-day.there are good days and days where spent in bed
Posted Aug 30, 2017 by Candelaria 6560
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As this is a disease that does not heal it has no choice but to live with it. There are people who are more symthomes that of the other and of the people who arrives at e tre happy and the other that it's hard to be happy.
Posted Oct 1, 2017 by Roosz Elsa 1000
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There are days more bearable and the days in which you can't or fingers, it is complicated and the pain depend on the progress of the disease.
Posted Oct 31, 2017 by robinrojasc 100
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You can be happy with any disease, the important thing is to accept it, be tolerant and above all be aware of.
Yoga and Meditation helps us to better understand our physical, mental, and spiritual. Understand how to affect our emotions in our body helps us to prevent many of the symptoms.
Yoga and Meditation helps us to better understand our physical, mental, and spiritual. Understand how to affect our emotions in our body helps us to prevent many of the symptoms.
Posted Nov 2, 2017 by Pochi 2050
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There is only to be independent of the disease
Posted Nov 2, 2017 by Martin 700
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To be happy the first thing is to want to be. There are people without the disease who don't. I have chiari and I am happy. That does not mean that on certain days when the pain and symptoms are severe and constant, falling a bit the moral. The important thing is to continue looking at life with optimism. Having chiari makes life more difficult, but it is not why we are going to stop being happy.
Posted Nov 22, 2017 by Vanesa 1550
