Is it advisable to do exercise when affected by Arteriovenous Malformation AVM? Which activities would you suggest and how intense should they be?

For me, they best exercise has been aquatic exercise programs in a WARM water pool, however warn water pools are very hard to find. Our local Cerebral Palsy Center has a warm water pool and offers various classes to the general public at a very reasonable cost

In my case I am not able to exercise. If I’m on my feet for too long I have swelling and tons of pressure. I can’t sit for a long time either so riding a bike is out.

Certainly be very careful against exerting yourself if you have an unruptured AVM- be aware of your limits and don’t bring your body past its limits. Be aware that even things like exerting yourself while constipated can lead to increased risk of rupture.

For those who have an active AVM rupture- you want to stay away from high exertion activities also. Keeping your pulse and blood pressure nice and low is preferable.

For those with treated AVM’s, whether embolized or removed via surgery- follow your doctor’s instructions regarding exercise. Do try to get up and around as much as possible to avoid blood clots or skin irritation from laying in bed. If you have ongoing limitations to exercise due to muscle atrophy or weakness/numbness you definitely should work with your therapists and doctors to develop a program of the type of exercise they want you to do.

In general, my advice is to exercise as much as you can - WITH YOUR DOCTOR INVOLVED - But don’t overdo it.

***Listen to your body****

Any non load bearing exercise should be safe, raised vascular pressure can be dangerous, walking, swimming cycling, I suggest you check what impact exercise can have, the oxygen carrying function of blood vessels in the brain can be impacted making you light headed, under NO circumstances do extreme sports Bungee jumping or anything that causes a sudden rush of blood to the brain, diving could also be a problem

Normal exercise. But obviously not rubgy! Can only say that in this case 'brain fog' pre and post gamma knife surgey was a main issue. And advice was when walking the fells was to stick.to paths known. Certsinly dod not prevent ice climbing on Ben Nevis in winter!

But would say that symptoms of brain fog, visual disturbance, headaches olefactory disfunction, concentration and depression can all be symptoms and confused with ME.