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Is Arteriovenous Malformation AVM hereditary?

Here you can see if Arteriovenous Malformation AVM can be hereditary. Do you have any genetic components? Does any member of your family have Arteriovenous Malformation AVM or may be more predisposed to developing the condition?

Is Arteriovenous Malformation AVM hereditary?
7 answers
No. Most research shows avm is developed in the womb. Some avm patients never have a rupture or show any symptoms.

Some avm patients will have a rupture and be treated.

Some avm patients will have a rupture and unfortunately pass away before it is able to be treated.

Avms are not passed from mother to child but some families will have multiple sufferers of avm.


Posted Sep 12, 2017 by Rhonda 2150
There are some new studies that are researching the fact that an AVM MAY by inherited. I think this is a certain type of AVM and not the kind I was diagnosed with

Posted Sep 13, 2017 by Jill 2000
Yes. Both Mayo Clinics in Rochester and Barrows Neurological Institute in Phoenix have clinics dedicated to the hereditary versions of AVMs. My own extended family has 12 people with AVMs, all descended from one great grandmother. They have isolated the gene and members of my family are now tested for it.

Posted Oct 1, 2017 by Denise 100
If you have HHT I believe it is. But I have not found any info in my research that says they are.

Posted Nov 2, 2017 by Kelly 1200
this is not known, and the incidence in the population is low. I have no family history of this, my condition was diagnosed in 1983, but my first major haemorrhage was in 1958

Posted Jul 5, 2020 by Mary 2500
It is believed to be congenital but not heriditary. Uncle had encephelitilis but absolutely no relation.

No links ever found and that includes hether meningitis as a baby played part. Can never know the type of meningitis. Mefical records no longer exist

Posted Nov 3, 2022 by Heather 5020
Some are in fact hereditary, some are just the luck of the draw. I have hereditary AVMs in my lungs, liver and GI tract. My cousin has Brain & Lung AVMs. We have HHT, which is hereditary. We have numerous Telangiectasias: nasal, GI, skin, mouth, vagina - which are malformed vessels. They bleed constantly. I now take a medication used for tumors, to shrink the vessels that feed the telangiectasia/AVMs to slow the bleeding & potential for bleeding.

Posted Apr 18, 2024 by Dawn 100

Is Arteriovenous Malformation AVM hereditary?

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World map of Arteriovenous Malformation AVM

Find people with Arteriovenous Malformation AVM through the map. Connect with them and share experiences. Join the Arteriovenous Malformation AVM community.

Stories of Arteriovenous Malformation AVM

ARTERIOVENOUS MALFORMATION AVM STORIES
Arteriovenous Malformation AVM stories
Please feel free to follow my journey of traveling back and forth from South Dakota to NYC to have life saving surgeries in order to live a long, healthier life for myself and my family. So far I have had 13 surgeries to remove my avm, which included...
Arteriovenous Malformation AVM stories
When I was very young  I always complained of headaches...mom would take me to the dr....and he would tell her I was faking them.  At the age of nine I woke up with flu like symptoms....mom was in denial anything bad was going on....she thought I j...
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Ruptured Dec. 2016, 6 days after emergency C section. Was eventually (once they figured out what was going on) treated with embolization. Hoping to find someone local who has either gone through the same thing or a doctor that knows what I'm looking ...
Arteriovenous Malformation AVM stories
I lived in Bangladesh till 2003 since my birth . Back in 2001 I realised I couldn't walk properly! If I was sitting in the ground, I had difficulty to go in standing position, I couldn't continue my aerobic classes anymore. That's when one of the Ne...
Arteriovenous Malformation AVM stories

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