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What is the life expectancy of someone with Arteriovenous Malformation AVM?
Life expectancy of people with Arteriovenous Malformation AVM and recent progresses and researches in Arteriovenous Malformation AVM
This completely depends on where the avm is located, what symptoms it presents, and whether the avm is treated or not.
Treated avms have a good chance of never bleeding again so your life expectancy would be the same as without avm.
An untreated avm is like a ticking time bomb. Some are not treatable or must be reduced in size before being treated. You might have radiation or gamma knife to reduce the size of the avm or nidus. The smaller avm could be treated more safely later using embolization or Craniotomy removal.
Treated avms have a good chance of never bleeding again so your life expectancy would be the same as without avm.
An untreated avm is like a ticking time bomb. Some are not treatable or must be reduced in size before being treated. You might have radiation or gamma knife to reduce the size of the avm or nidus. The smaller avm could be treated more safely later using embolization or Craniotomy removal.
Posted Sep 12, 2017 by Rhonda 2150
Again, this is dependent on the location of the AVM
Posted Sep 13, 2017 by Jill 2000
I’m 44. I’ve known about mine sine I was 16.
I’m doing fine. I had another scan recently to have a reference since all my old scans aren’t around anymore . I haven’t had a paralyzing headache since I changed my additude about how I deal with stress( college, teen life, etc) shortly after my diagnosis.
Once I decided to make a change I haven’t had an incident of 1/2 body paralysis and brain bursting headaches.
—- 1.9 x 2.5 x 1.6 cm /branch of the right M1 segment to right superficial cerebral middle vein.
I’m doing fine. I had another scan recently to have a reference since all my old scans aren’t around anymore . I haven’t had a paralyzing headache since I changed my additude about how I deal with stress( college, teen life, etc) shortly after my diagnosis.
Once I decided to make a change I haven’t had an incident of 1/2 body paralysis and brain bursting headaches.
—- 1.9 x 2.5 x 1.6 cm /branch of the right M1 segment to right superficial cerebral middle vein.
Posted May 17, 2018 by James 150
That will depend on where it is and how fragile, my own case is unusual, I had a haemorrhage at only 13 months old, major surgery in 1988, still have 2 AVMs so not symptom free, but am now 63. Provided I don't take silly risks, I do hope to have a reasonably normal life expectancy. I do know there is increased risks of dementia, TIA etc, I do lots of brain training, puzzles etc. The biggest danger is ignorance by some medical professionals on the side effects as this is a rare conditon.
Posted Jul 5, 2020 by Mary 2500
Depends if it hemorrages.
My old man is still here and will be 60 in January. Has a near enough life expectancy as everyone else. Absolute lottery.
The longer you live without surgery or treatment the more the chance of it going bang in the long run. Some people choose not to.have treatment which is entirely personal choice we were not going to take the chance
My old man is still here and will be 60 in January. Has a near enough life expectancy as everyone else. Absolute lottery.
The longer you live without surgery or treatment the more the chance of it going bang in the long run. Some people choose not to.have treatment which is entirely personal choice we were not going to take the chance
Posted Nov 3, 2022 by Heather 5020
