Which advice would you give to someone who has just been diagnosed with Aspergillosis?

Take the condition very seriously and make sure you follow exactly medical advice to avoid lung scaring, ( bronchiectasis) If you suspect a chest infection ( ie continual coughing up mucus) insist on a sputum test asap so that you can commence antibiotics as soon as you have the results, if not earlier.

Be grateful.You have a positive diagnosis, and the worry that it could be much worse has been taken away. I have had it for 12 years and even though I have had to adjust my lifestyle I have still managed to create a situation where life is well worth living.

My advice to you if you have just been diagnosed with this condition is to study at look into everything that you can about it join a support group and get an advocate for yourself if you do not have a loving person with you who is willing to help you with this experience it will be very difficult the medication that they give to save your life often is as a debilitating as the condition and you will need help. My experience is that it is better to move yourself into being your own superhero rather than a victim if you are not already living a good clean lifestyle it's time. I think it's important to give yourself time to grieve for the things that you may lose for me it was a very physical lifestyle all of my pets that I loved and my farming lifestyle. It is good to learn unattachment and that things will not bring you the happiness that you seek being creative and being able to do something for someone else we'll bring you more happiness. Even though you may have had to quit your job and go on oxygen at home when you are feeling well enough you can write cards to others and encourage them maybe people from your workplace or people from your life it's important to try to stay connected somehow. It's important to eat good healthy food and have someone willing to help you fix that if you are too tired yourself.

Try to get referred to Wythenshaw hospital if you are in the UK as there is a specialist department for this.
Do not "get by" if you have a chest infection - you will need antibiotics for this.
no gardening and stay away from anyone using compost. soil, wet leaves. do not put wet clothes on a radiator. Again all of this is on the aspergillus website.

Get out and about and research good sites like this one or NHS have a good site too. Stay away from wooded areas I loved walking through woods and didn’t realise that the leaf can cause mould spores. Beaches and open areas I find to be the best. And I discovered myself the HEPA air purifier best advice I can give works wonders only had it a week.

The best advise I can give is first calm down. Do not be frightened, then learn EVERYTHING you possibly can about Aspergillosis!! Ask your doctor and health professionals questions and concerns, also eventually sometimes you can even inform them because many do not know much about this. What I would have done different the first few years is get much more informed!!

Knowledge is power and will help you live as close to a normal life as possible. You will find lots of important information at https://aspergillosis.org

The UK National Aspergillosis Centre runs large and active communities on Facebook https://www.facebook.com/groups/aspergillussupport - join it and follow the many threads.

find out as much as you can about the condition - don't be afraid to ask questions, however silly you think they are
I had very helpful advice from hospital in Manchester which was extremely helpful as others, such as my gp didn't really understand it. Be well informed, as if you are admitted in an emergency, it is unlikely the hospital staff will understand it

Find a very good specialist who understands the condition.
Also go to alternative treatment, such as naturopath, herbalist, homeopath etc.
Take photos of things you cough up, to show your doctor.
Insist on a sputum test for fungus detection.
A blood test can then determine the type you have.
Get a lot of rest, don't try to push through, if you're in the middle of outbreak - sickness, coughing, difficulty breathing etc.
Get information to tell your family and friends.
People don't realise how serious it is.
A chest or lung infection is not the same as having a fungal infection blocking your airways.
Try to stay positive

Be your own advocate. Do your research for your unique circumstances. Knowledge is power. Understand what is being prescribed, how to take it, what to avoid and what to best improve your health.

Take medication and remain calm. It's not the end of life!