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Is it easy to find a partner and/or maintain relationship when you have Bladder Exstrophy?

Relationships and Bladder Exstrophy: real patients share how diagnosis affected dating and partnership.

Couple and Bladder Exstrophy
2 answers
Se non si sta in primis bene con se stessi e con l'accettazione della malattia, è difficile riuscire a "lanciarsi" in una relazione.
quando si sta bene invece, non è difficile trovare un partner: il suggerimento è parlarne liberamente e quanto prima della malattia, per testare il grado di accoglienza da parto dell'altro.
Si scoprirà come tante persone non si fanno fermare da questa malattia.
Una volta instaurato il rapporto, la difficoltà di mantenimento è parimenti a quella di qualsiasi coppia: amare e amarsi chiede fatica, ma non dipende dall'estrofia vescicale.
Sicuramente, in questo tipo di coppia, si suggerisce di condividere la malattia e parlarne apertamente e liberamente, coinvolgendo anche il partner nelle riflessioni e nelle scelte.

Posted Oct 13, 2017 by Giovanni 3050
Translated from spanish Improve translation
I think q the person with extrofia is as normal as anyone, we have q take care a little with the food but we can live a normal life, depending on the intensity of the extrofia, in my case I have a stable partner and I have 2 daughters, with the extrofia can give you modesty scars q you are, when you start in the sex life or in your teenage years, but you've got an active sexual life without any problem

Posted Jul 13, 2017 by Lorena 1850

Couple and Bladder Exstrophy

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BLADDER EXSTROPHY STORIES
Bladder Exstrophy stories
Hi all, I'm Tijo from India. Born with BE. Undergone 13 surgeries. Now I'm using caths for draining. I regularly wash my bladder. Some issues are there with my left kidney. But I feel better now.
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Jayse was born in September of 2011! He was our first born at a young age! Doctors didn't know what was going on when he was delivered. They had never seen anything like that before. Then we were sent to MUSC and the doctors their knew what to do and...

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