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Castleman disease diet. Is there a diet which improves the quality of life of people with Castleman disease?
Diet and Castleman disease: foods that patients report help their quality of life, with a medically reviewed summary.
Any healthy diet is good for you so yes always try to stay healthy. If you can run then run to keep your organs pumping, my nerve damage has now got so bad I can't exercise and I am gaining weight. The problem is if you get ill you really are ill and sometimes need antibiotics to help you
Posted May 20, 2017 by Dave 860
There isn't any diet the improves someone with CD quality of life. Despite what some people out there may say. Anything in your diet that gives a major boost to your immune system should be taken with caution. With CD your immune system is already acting haywired so you don't want to add fuel to that fire. Now with CD when untreated will cause organ failure. In my case I had kidney, liver, and bone marrow failure. My kidneys took the biggest hit and I now have stage 3 kidney disease. Though a kidney conscience diet I can help prevent my kidneys from getting worse.
Posted Oct 7, 2017 by Victoria 840
I have multicentric Castleman's disease and I have found my symptoms are alleviated considerably if I avoid foods that increase IL-6 (the cytokine that is overproduced in Castleman's) and include foods and supplements that inhibit IL-6. It really seems to work!
The most effective drugs to date against Castleman disease are Tocilizumab and Siltuximab, both IL-6 inhibitors. I have decided not to use them since there are side effects. Every month I get better - without drugs.
See list of foods and supplements to increase and decrease IL-6 (with links to studies): https://www.selfhacked.com/blog/interleukin-6/
The most effective drugs to date against Castleman disease are Tocilizumab and Siltuximab, both IL-6 inhibitors. I have decided not to use them since there are side effects. Every month I get better - without drugs.
See list of foods and supplements to increase and decrease IL-6 (with links to studies): https://www.selfhacked.com/blog/interleukin-6/
Posted Feb 26, 2018 by dandsp2 300
