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Story about CHARGE Syndrome .

SIR Henry

Jul 24, 2017

CHARGE Syndrome
My son, Henry was born 1/31/2013. he has CHARGE Syndrome with Colombola, no cochlea, a little heart defekt, delay in his development, kidney problems (only 1 left), doesn't communicate BUT is the most happy little Henry. We call him Sir because he is so special and has always a lot of ppl around him.

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