Can you be happy living with Choroideremia? What do you have to do to be happy with Choroideremia? Living with Choroideremia can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Choroideremia

▷ Living with Choroideremia. How to live with Choroideremia?

Stories of Choroideremia

CHOROIDEREMIA STORIES

VIEWS

BY

Hello to all affected CHM persons, my name is Michael and I life in Geemany. I m the spokesman of the German CHM community and I work in different European and international organization to make CHM more public and find a therapy for CHM. Last year ...

435

6/14/17, 11:59 AM by Michael Längsfeld

MY SON WHO IS 16

We found out he had CHM this year. has some issues at night otherwise he is doing pretty well. we have been to PA to see Dr. Aleman and doing a history study there and in Dallas Tx. my father was diagnosed with RP 40 some years ago...secere n...

389

5/29/17, 1:12 PM by Gina

WENDY'S STORY

Our son was diagnosed when he was 12 years old with CHOROIDEREMIA. He is now 20. Still drives and lives a normal life with it, he is in college and works a full time job. Choroideremia has still affected his eyes greatly mainly night vision. We were ...

369

6/29/17, 10:54 PM by Wendy

DRIVING BLIND

Two brothers, Tod and Justin Purvis, who suffer from a degenerative eye disease, and are going blind. Circumnavigate the United States, seeing the great sights that make America beautiful. Limited sight, with unlimited Vision.

351

5/29/17, 7:38 PM by TODEPURVIS

CARRIER

I am a 36yo mom of 2 kids. 1 boy 1 girl. I am a carrier of CHM and I have extreme light sensitivity. My family has a very strong inheritance factor for CHM. I have spent my whole life with close family members that are affected with this eye disease....

Living with Choroideremia. How to live with Choroideremia?