I am a ME victim since I am 29. I spent 3 years before finding my condition on my own. I was very fed up with all stupid persons including doctors in medicine believing my disease was "in my head", that is a psychological stuff. I visited some psychiatrists who confirmed I had no mental trouble (I am a psychologist and also have a PhD in Management, that does not imply I am clever or perfectly balanced, but we can admit I am not totally stupid either). Then I managed to go to Paris to valid my beliefs. You are right and good luck, since there is not much to do, the doctor said. Well...indeed.
I have to say that luck is not enough. I had to find an enormous psychological strenght, and some help. Today I can say I feel a little bit better. But I still do not work. I lost many things, on an economic viewpoint, but also my husband and probably a part of my dignity. But I can say I am lucky since people such as my parents and some friends help me now.
As I write these few words, I understand that I should write a book - in french, my mother tongue which I write and speak much better, fortunately. Because there is so much to say about ME. ME is a nightmare, and the fact that too many people, including doctors, still say it does not exist, amplifies the hardness of the condition. However, I have learnt a lot about me, about people, about what life is.
<p>Merci, Marie, pour votre témoignage.</p>
<p>Découvrant ce site aujourd'hui (13.08.16), je n'en prends connaissance que maintenant. Si vous décidez d'écrire un livre, je serai heureux, si vous le souhaitez, de vous faire part de mon expérience avec cette maladie.</p>
<p>Stephan Oberg</p>
<p>[email protected]</p>